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PROFIL Study to Investigate the Effect of GPB on NfL Levels in Patients With Corticobasal Syndrome (CBS) (PROFIL)

Neurofilament Light Chain (NfL) is a protein that is found in nerve cells. It is released into the cerebrospinal fluid and blood when nerve cells are damaged or degenerating. Measuring levels of NfL can be used as a biomarker to track the progression of various neurological conditions, such as multiple sclerosis, Alzheimer’s disease, and other neurodegenerative disorders. The goal of […]

Basic Research Fuels Advanced Discovery

  “Fundamental cell biology research into neurodegeneration may be the key to accelerating understanding of neurodegenerative and so-called “incurable” diseases such as Alzheimer’s and Parkinson’s.”   Sonia Fernandez http://www.news.ucsb.edu/2016/017101/basic-research-fuels-advanced-discovery

Alternative treatments?

Since there is no cure for CBGD, I think there is an urgent need to find some alternative treatments/ therapies for CBGD, PSP. I came across this website: International Journal of Pharmaceutical Sciences and Research.  While studies have shown a promise of utilizing herbs as a treatment, it still is just beyond our reach. Although genetics play a role in […]

Clinical trials

University of California, San Francisco  is sponsoring a study to determine the safety and tolerability of TPI 287. They are currently seeking applicants.  For more info: Safety Study of TPI-287 to Treat CBS and PSP (TPI-287-4RT)

Cannabis a treatment for MS?

So its been about a year since my last post and I had debated on taking the site down but decided against it. I  hope the information would be helpful to those  affected by CBDG.  I’m going through some of the comments  and there is one thing I do want to stress for treatments or possible treatments that I discuss […]