Reason for this Site: What is CBGD? Cortical Basal Ganglionic Degeneration is a little known neurodegenerative disease in the Parkinson’s family which my father was diagnosed with in 2001 by the Mayo Clinic . His family doctor had thrown up his hands and sent him there since he was unable to determine a prognosis for his symptoms. Our search for […]
PROFIL Study to Investigate the Effect of GPB on NfL Levels in Patients With Corticobasal Syndrome (CBS) (PROFIL)
Neurofilament Light Chain (NfL) is a protein that is found in nerve cells. It is released into the cerebrospinal fluid and blood when nerve cells are damaged or degenerating. Measuring levels of NfL can be used as a biomarker to track the progression of various neurological conditions, such as multiple sclerosis, Alzheimer’s disease, and other neurodegenerative disorders. The goal of […]
Music and Brain Stimulation for Upper Extremity Performances in Patients With Corticobasal Syndrome
This Study investigates the potential for music-based intervention and non-invasive brain stimulation to enhance outcomes in patients with CBS, paving the way for non-invasive and affordable rehabilitation options in the future. For more information check out the link below https://ichgcp.net/clinical-trials-registry/NCT05073471
Financial Assistance for patients with rare diseases
Nord (National Organization of Rare Disorders) has a program called Rare Care to provide financial assistance for those with rare diseases. For more information follow this link here: https://rarediseases.org/patient-assistance-programs/
Progressive Supranuclear Palsy CorTico-Basal Syndrome Multiple System Atrophy Longitudinal Study UK (PROSPECT-M)
Researchers are seeking better methods to diagnose and treat symptoms earlier for PSP and CBGD. For information about the study or wish to participate please follow this link below: ClinicalTrials.gov Identifier: NCT02778607 Contact: John Woodside, PhD j.woodside@ucl.ac.uk Contact: Huw Morris, PhD, FRCP h.morris@ucl.ac.uk
Understanding CBD
video uploaded by UCSF Memory and Aging Center share findings from researchers on PSP and CBD